September 2017

Crystal wrote a little something for you on this day in September

Written on Friday, September 8th @ 2:35pm

Sitting in my bedroom, looking out the window, thinking I need to get this update done to get the prayer warriors starting up again.

Happy Father's Day... Crystal wearing purple with her daddy.

Happy Father’s Day… Crystal wearing purple with her daddy.

The weather had a chill in the air yesterday which I must admit gets me excited for wearing sweaters, watching football and then all of a sudden it’s Halloween. Yep, I sure do like fall.

Thinking of football, what a beautiful and thoughtful new tradition the Iowa Hawkeyes have at their games. Waving to all of those fighters in the Children’s Hospital. Makes you tear up when you see it.

Since the last update we only had one scare, Crystal had been feeling ill with a constant headache and had been having some back pain. She is a tough cookie but had enough and went to her family doctor. With her medical history they needed to rule out Cancer in the her bones. We were very shocked to even think of that, we thought it was just a flu bug that needed some medicine to help beat it. She was taken care of immediately by our wonderful family doctor. And then we got good news, no Cancer, it was probably a virus that lasted a little longer than she wanted. But what a day/week of emotions.

Alanna and her thoughtful gift to Crystal.

Alanna and her thoughtful gift to Crystal.

We also in the last few months have celebrated Father’s Day, Cassidy’s (Crystals little sister) purchased her 1st home all by herself, Fourth of July, Crystal and Gage’s 1 year Anniversary plus Rod and I celebrated our 27th year Anniversary. Of course their were birthday parties, concerts, parades and fairs, crazy to think how much life you have lived in just 3 months. It kind of makes you think should we be slowing down or is that living life? What have you done in the last three months, I bet you would be surprised and will forget some of the things you have done or have lived through just in that short period of time.

A thoughtful thing happened in June for Crystal. There was a girl I met years ago on my dance team. As she danced with me, I got to know her, I would even make her lunch during her breaks at college. We became good friends and chatted all the time. This girl, this friend of mine is named Amy and she has a daughter named Alanna. Alanna graduated from high school this last year and her graduation money she received, she graciously donated to Crystal. Such a kind thoughtful gift from a young woman just graduating. However, I think Crystal was even more excited when Alanna started following her on Instagram because see, Alanna is a Supermodel. Thank You again for helping Crystal. Thank you again for making her feel special.

So of course as a mom, I want her to feel special again as we get ready for the next set of scans. Tuesday, September 19th is the big day. Your prayers, kind words, stories are so very welcomed.

And when you send those prayers, those positive vibes please throw in some extra ones for everyone that has been affected by the natural disasters. Could you even imagine fighting Cancer and losing everything on top of it all. It breaks my heart.

A note from Crystal…

I usually don’t like to write in my caring bridge. I am very thankful that my mother has a natural talent in writing and can explain our life’s journey through her eyes. She helps us get the prayers that my family and I need.

My mom on her wedding day July 1990 & Me on my wedding day July 2016. No the photo was not planned.

My mom on her wedding day July 1990 & Me on my wedding day July 2016. No the photo was not planned.

A lot of you ask why don’t I write… And I say because it doesn’t come naturally to me and explaining my life while I am living it can be depressing. Especially when I am going through chemo and surgeries at the time.

I usually keep my thoughts to myself and when you see me I always have a smile on my face. Sometimes it is a real smile and other times it is fake. You can’t be happy all the time when you are fighting cancer.

A lot of you ask how I am doing? Am I nervous? What does your gut feeling tell you?

So far I have been feeling pretty good… just a few back problems. My life is always crazy busy… that’s how I like it! So it leaves very little time for me to worry about cancer and pain.

Am I nervous?

I am always nervous. You never know what the doctor is going to tell you. My cancer is so rare, different and confusing that you never know what they are going to say or what they are going to want you to do. The nice thing about my doctors at the Mayo Clinic is, I love them and I trust them with my life.

So all you cancer patients out there or even the ones that are struggling with health problems~ My advice that mom has always given me is to ALWAYS trust your gut… If you are questioning a doctor, get a second opinion because then when you get results you don’t want to hear, you will know that you are doing what your gut is telling you to do.

My gut feeling right now… I am not really worried about cancer at this second… I am just trying to get ready for CR Spirit Auditions on September 13… after those is when I will have time to worry about cancer.

When I go into my appointments I always get my mind ready for good news, but also bad news. It is Stage 4 Pancreatic Cancer with a high grade neuroendocrine tumor… so you can’t always prepare for the best.

For those who don’t know what a high grade neuroendocrine tumor is and honestly I didn’t really know what that meant, a high grade neuroendocrine tumor is a type of carcinoma. It is a fast growing and aggressive cancer. That is why we go to the Mayo every 2-3 months so we can stay on top of it.

With that being said I am very lucky to still be alive. Back in 2013 we didn’t know if I would even make it a few years. And look at me today. I am 25 years old. I have graduated college. Been on the CR Spirits Professional Dance Team for 8 years. Married to the love of my life. Bought a beautiful home. And I have learned so much in the past 4 years.. not just about myself.. but about life. I wish in my teenage years I would have known what I know now. But that is just life that is how we grow has people.

Getting ready for a new Season with the CR Spirits! It's gonna be the Spirits 25th Year Anniversary!

Getting ready for a new Season with the CR Spirits! It’s gonna be the Spirits 25th Year Anniversary!

Now lets get back to CR Spirit Auditions on September 13th! This is something I always look forward too. It’s like a fresh new start into something I love. Thank God for this dance team & studio. I don’t know who I would be today without it. Mom you truly have a talent. I wish every single kid in Cedar Rapids could be a part of this studio. It is amazing and I am so happy it has been a part of my life since I was born. I wouldn’t have it any other way.

So I am going to wrap this up. I would love some prayers on September 19th. I love hearing from everybody that week! And if I don’t get back to you it is because I am getting so much love at once and I can’t respond to everybody.

Also I love hearing other peoples stories and goals in life. That is one thing I have learned about myself this year. I love hearing other peoples journeys… not just about cancer but life. It makes me happy. And I love hearing peoples goals. I think that is why I love teaching the Junior Spirits ages 13-16.. they just have so many goals! It is the best part about my Tuesday Nights!
Thank you for reading! Have a great day!

-Crystal Marie

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